For the last five days, I have been sharing different posts in a #MiniSeries to help raise awareness for Congenital Heart Defect Awareness Week!
As a mother of a “Heart Hero”, this is a very special week for our family. Our son was diagnosed with Tetralogy of Fallot, I explain about this condition in this mini-series. It was a difficult first year, my son had surgery at 16 days old and then complete heart repair at 6 months old. He was on heart medicine up until this past summer, so we really consider that a big milestone in our house! My son is thriving and doing well, but for those families who did not have the same outcome, please say a quiet prayer for them.
In honor of it being Happy ❤ Day, I have compiled a list of great books for children and adults to help explain and understand congenital heart defects.
Here they are:
Riley worries about sharing her secret of having a heart defect and a pacemaker with her school friends. She tackles her fear of being different and reveals her secret to her friends in a unique way. Children will learn about accepting others differences and embracing the attributes that make them special. Suggested age range for readers: 3-8
2) Zipline –
“Zip-Line” is a charming children’s book written for young boys and girls that had open heart surgery and are left with a “zip-line” – a large scar on their chest.
When Matt and his wife, Sarah, we’re halfway through her pregnancy, they discovered their son would be born with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital defect. Matt and Sarah’s son, Bowen, was born on 9/9/10 and received a huge following through the Hammitt’s blog (bowensheart.com), K-LOVE, and ABC News. A portion of the proceeds from the book goes to the foundation the Hammitts’ have started to help parents with children who have this heart condition.
Alex’s heart book, Born With A Broken Heart, is an inspirational and educational children’s book. It is our hope that this book will give parents and children the opportunity to learn about congenital heart disease (CHD) and to spread CHD awareness throughout the world.
1) Heart Warriors –
Five months pregnant, Amanda Adams and her husband were given two abysmal choices regarding her pregnancy: force her baby to fight for his life through countless invasive and dangerous surgeries, or perform a late-term abortion. Despite the fact that Liam was missing half his heart, Amanda chose life.
2) Sam’s Heart
When Nicole was pregnant with Sam she was told that there was little hope for him to live. Now a healthy two-year-old Sam has had his fair share of operations and time in the hospital but now lives each day with fun and purpose. Journey with Nicole as she shares her family’s story of overcoming the world’s obstacles to trust and believe in God’s promise. With God on your side miracles happen. www.samsheart.com.au
I could have written a blog about my kid – the one born with a funky, hypoplastic heart. But Henry (the Blog) was more than just sharing Henry’s story. Sure, it chronicled our lives during Henry’s years in and out of hospitals, multiple surgeries, and terminal maternal hysteria. Good times, indeed!
Then, of course, there is my book “Jacob’s Journal – My Journey Home”
“Jacob’s Journal – My Journey Home” is written by a mother of a child diagnosed at birth with Down Syndrome. This story is unique in the way it was written since the mother chose to write it as if her son was telling the story. It will take you on an incredible journey, as this first time Mom finds out when she was 4 months pregnant, that her child has a congenital heart defect called – Tetralogy of Fallot.
Travel with this family on their emotional roller-coaster ride from Jacob’s birth, through his first surgery, to the first couple of months when got home.
Is there a favorite book about CHD that you would like to share? Leave it in the comments.
As a Special Needs Mom & Lifestyle Blogger, I am passionate about spreading awareness and acceptance for children with special needs, and to give others a glimpse into our life as a typical family with a little something special. I love to talk about fashion, travel, children activities, healthy lifestyles and more!