Congenital Heart Defects (CHDs) are the most common birth defects in the United States, affecting approximately 1 in every 110 (about 40,000) babies each year.
However, early screening is key to an infant’s survival. We were fortunate because we detected Jacob’s heart condition when I was four months pregnant.
According to Dr. Matthew Davis, Chief Medical Executive with the Michigan Dept of Community Health “Across the country, an estimated 300 babies are sent home from hospitals each year with undetected congenital heart problems.”
So what is being done? Beginning April 1, 2014, Michigan will join 31 other states that have added pulse oximetry screening to their newborn screening tests to detect critical congenital heart disease (CCHD) in newborns. For more information click here.
Some CHDs may be diagnosed during pregnancy using a special type of ultrasound called a fetal echocardiogram, which creates ultrasound pictures of the heart of the developing baby. However, some CHDs are not detected until after birth or later in life, during childhood or adulthood. If a healthcare provider suspects a CHD may be present, the baby can get several tests (such as an echocardiogram) to confirm the diagnosis.
As a Mom, I would love it if you would check out my book “Jacob’s Journal – My Journey Home” as we share our life with CHD.
Read more about our journey when my son first got diagnosed with CHD in my book: “Jacob’s Journal – My Journey Home”.
“Jacob’s Journal – My Journey Home” is written by a mother of a child diagnosed at birth with Down Syndrome. This story is unique in the way it was written since the mother chose to write it as if her son was telling the story. It will take you on an incredible journey, as this first time Mom finds out when she was 4 months pregnant, that her child has a congenital heart defect called – Tetralogy of Fallot.
Travel with this family on their emotional roller-coaster ride from Jacob’s birth, through his first surgery, to the first couple of months when got home.
As a Special Needs Mom & Lifestyle Blogger, I am passionate about spreading awareness and acceptance for children with special needs, and to give others a glimpse into our life as a typical family with a little something special. I love to talk about fashion, travel, children activities, healthy lifestyles and more!